RARE News

RARE Revolution expands its legacy with the launch of RARE Revolution insider

By admin

19 May 2025

RARE News

Turning hope into action: The story of Happy Heart Week and a new era for Barth Syndrome

By admin

16 May 2025

RARE REV-inar

One degree of separation from NF1

By admin

15 May 2025

Charity & advocacy

NF1 One degree of separation campaign: Interactive body map

By admin

15 May 2025

RARE News

NephCure to recognise IgA nephropathy (IgAN) awareness day on May 14, 2025

By admin

14 May 2025

Industry Insights

NICE’s highly specialised technologies (HST) criteria: a summary and impact analysis

By admin

14 May 2025

Turning the tide for rare disease

Life wants me here!

By admin

9 May 2025

RARE caregiving

The caregiver engine steers accelerated rare cancer trials

By admin

7 May 2025

RARE News

Charity launches appeal to increase research into PSP and CBD

By admin

5 May 2025

RARE News

Sickle Cell Disease Association of America names events manager

By admin

29 April 2025

RARE News

Graeme Souness to swim the English Channel, there and back, to be the difference for EB

By admin

29 April 2025

Turning the tide for rare disease

This isn’t just a day. It’s a movement. Undiagnosed Day 2025: why action can’t wait

By admin

29 April 2025

RARE News

UK charity releases new funding for research into PSP & CBD

By admin

25 April 2025

RARE News

NephCure celebrates second annual APOL1 Kidney Disease Awareness Day on April 29, 2025

By admin

23 April 2025

RARE News

Global nonprofit CureDuchenne to host FUTURES National Conference for the Duchenne and Becker muscular dystrophy community

By admin

23 April 2025

RARE News

Save the date: 1st International Clinical Care Symposium on spinal muscular atrophy.

By admin

23 April 2025

RARE News

National charity expands helpline support in Wales

By admin

17 April 2025