Rare insights

UK charity releases new funding for research into PSP & CBD

By admin

25 April 2025

RARE News

NephCure celebrates second annual APOL1 Kidney Disease Awareness Day on April 29, 2025

By admin

23 April 2025

RARE News

Global nonprofit CureDuchenne to host FUTURES National Conference for the Duchenne and Becker muscular dystrophy community

By admin

23 April 2025

RARE News

Save the date: 1st International Clinical Care Symposium on spinal muscular atrophy.

By admin

23 April 2025

RARE News

Join as a trustee and help transform the future for children with Schinzel-Giedion syndrome

By admin

3 April 2025

RARE News

CureDuchenne and Children’s Hospital of Orange County partner to bring world-class care to families with Duchenne muscular dystrophy

By admin

7 March 2025

RARE News

Unlock the future of pharma marketing: the 8th Annual Pharma Omnichannel Excellence Conference

By admin

5 March 2025

RARE News

Exposing the gaps in screening and care for hereditary brain aneurysms

By admin

3 March 2025

RARE News

SMA Europe announces the awardees and projects shortlisted through its call for research no.12

By admin

28 February 2025

RARE News

RARE DISEASE DAY 2025: Artistic expressions bring to life realities of rare conditions

By admin

27 February 2025

Turning the tide for rare disease

A personal and professional drive to advance research for rare disease

By admin

24 February 2025

RARE News

ED Society calls for support amid financial struggles to secure sponsorship for key conference

By admin

17 February 2025

Rare insights

New groups extend support for carers of people living with rare brain disease

By admin

17 February 2025

RARE News

Cure HSPB8: a new patient advocacy group for people living with HSPB8 myopathy

By admin

17 February 2025

Charity & advocacy

Immunocompromised Association kicks off 2025 with safety and fun, with its inaugural virtual New Year’s Eve ball drop+

By admin

14 February 2025

RARE News

The healing power of play: how starlight delivers happiness to kids living with rare diseases

By admin

12 February 2025

RARE News

CureDuchenne announces educational events for families and caregivers of individuals with Duchenne or Becker muscular dystrophy

By admin

6 February 2025