Charity & advocacy

Charity & advocacy

Global Commission progresses technology health pilots to accelerate time to diagnosis for children with a rare disease

By CONTRIBUTOR

29 June 2020

Patient voice

National CMV Foundation – Amanda’s story

By CONTRIBUTOR

24 June 2020

RARE News

RARE Revolution Magazine and TREND Community are proud to announce their new partnership, working together to power up the voices of the youth rare disease community

By admin

24 June 2020

RARE News

Launching RARE Youth Revolution platform

By admin

18 June 2020

Charity & advocacy

Nystagmus awareness day – 20 June 2020

By CONTRIBUTOR

17 June 2020

RARE News

A global gateway to a lasting legacy

By admin

17 June 2020

Medical

Danny’s Dose changing rules and saving lives

By CONTRIBUTOR

12 June 2020

Charity & advocacy

Welcome new boost for mums and dads of young children with albinism

By CONTRIBUTOR

11 June 2020

Charity & advocacy

Local charity thanks the north-east for the gift of time

By CONTRIBUTOR

5 June 2020

Charity & advocacy

My Little Lockdown Life created by Kate Read & Rebecca Atkinson

By CONTRIBUTOR

12 May 2020

Patient voice

EB World Congress—building on momentum and strength in numbers for epidermolysis bullosa

By CONTRIBUTOR

27 April 2020

Charity & advocacy

Making sense of the headlines: empowered and informed treatment choice in haemophilia

By CONTRIBUTOR

15 April 2020

Medical

With these feet? – A spotlight on young onset Parkinson’s disease

By CONTRIBUTOR

14 April 2020

Medical

Healx using artificial intelligence to find combination drug treatments for COVID-19

By CONTRIBUTOR

6 April 2020

A day in the life

Working from home top tips

By CONTRIBUTOR

23 March 2020

RARE News

Genomenon released genomic landscape for ectodermal dysplasias for Rare Disease Week

By admin

5 March 2020

Patient voice

RAPADILINO syndrome

By CONTRIBUTOR

18 November 2019

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