Charity & advocacy

Charity & advocacy

PTC Therapeutics’ 2020 STRIVE awards for Duchenne muscular dystrophy recognise four patient advocacy organisations

By CONTRIBUTOR

30 September 2020

Charity & advocacy

Scottish based liver charity PBC foundation celebrates success of its first global online event

By CONTRIBUTOR

29 September 2020

Charity & advocacy

CMT Research Foundation fighting to shorten the time to diagnosis and put CMT on the radar of pharma

By CONTRIBUTOR

24 September 2020

Charity & advocacy

A race against time

By CONTRIBUTOR

18 August 2020

Charity & advocacy

The Albinism Fellowship UK and Ireland are proud to support a campaign to end discrimination within international blind sport

By CONTRIBUTOR

5 August 2020

Charity & advocacy

“I Stay Home for RARE” financial assistance campaign launched by Living in the Light.

By CONTRIBUTOR

8 July 2020

Charity & advocacy

Kawasaki disease UK

By CONTRIBUTOR

1 July 2020

Charity & advocacy

Global Commission progresses technology health pilots to accelerate time to diagnosis for children with a rare disease

By CONTRIBUTOR

29 June 2020

Charity & advocacy

Nystagmus awareness day – 20 June 2020

By CONTRIBUTOR

17 June 2020

Charity & advocacy

Welcome new boost for mums and dads of young children with albinism

By CONTRIBUTOR

11 June 2020

Charity & advocacy

Local charity thanks the north-east for the gift of time

By CONTRIBUTOR

5 June 2020

Charity & advocacy

My Little Lockdown Life created by Kate Read & Rebecca Atkinson

By CONTRIBUTOR

12 May 2020

Charity & advocacy

Making sense of the headlines: empowered and informed treatment choice in haemophilia

By CONTRIBUTOR

15 April 2020

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