Rare insights

Rare insights

The Gap in access to rare disease treatments for low-middle-income countries

By CONTRIBUTOR

20 February 2025

Rare insights

Patient-led research in rare diseases: How can we make this a reality?

By CONTRIBUTOR

20 February 2025

Science & tech

Enhancing clinical trial success through proactive patient advocacy and engagement

By CONTRIBUTOR

19 February 2025

RARE News

ED Society calls for support amid financial struggles to secure sponsorship for key conference

By admin

17 February 2025

Rare insights

New groups extend support for carers of people living with rare brain disease

By admin

17 February 2025

RARE News

Cure HSPB8: a new patient advocacy group for people living with HSPB8 myopathy

By admin

17 February 2025

Charity & advocacy

Immunocompromised Association kicks off 2025 with safety and fun, with its inaugural virtual New Year’s Eve ball drop+

By admin

14 February 2025

RARE News

The healing power of play: how starlight delivers happiness to kids living with rare diseases

By admin

12 February 2025

RARE News

Blizzard Entertainment® Raises Over $2 Million for CureDuchenne through World of Warcraft ® charity pet program, funding lifesaving Duchenne muscular dystrophy research

By CONTRIBUTOR

12 February 2025

RARE News

CureDuchenne announces educational events for families and caregivers of individuals with Duchenne or Becker muscular dystrophy

By admin

6 February 2025

Turning the tide for rare disease

The transatlantic partnership advancing breakthrough science into innovative treatments for rare diseases

By CONTRIBUTOR

5 February 2025

RARE News

Neuro-orthoptics in progressive supranuclear palsy

By admin

1 February 2025

RARE REV-inar

A blueprint to advance genomic medicine in Latin America

By CONTRIBUTOR

29 January 2025

Medical

Sepsis Research FEAT urges vigilance against sepsis this winter

By CONTRIBUTOR

28 January 2025

RARE News

Landmarks illuminate purple and blue for feeding tube awareness

By CONTRIBUTOR

28 January 2025

RARE caregiving

Considering caregiver value at JP Morgan

By CONTRIBUTOR

22 January 2025

Turning the tide for rare disease

Rare disease champions: how Cycle Pharmaceuticals and their partner Inceptua are redefining pharmaceutical philanthropy and opening up access to novel therapies in low and middle-income regions

By Becky Pender

15 January 2025

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